Shady's Tap Room hosting a benefit to raise money for the Cystinosis Research Network. This non-frofit organization provides funding to research the incredibly rare disease Cystinosis, as well as privde assistance to individuals with this genetic disease.
Shady's Tap room will be graciously hosting A Night for Jax Sunday September 30th, from 3-7pm. During that time frame, Shady's will donate 25% of all their sales to give to the Cystinosis Research Network! There will be a large silent auction (sorry cash or check only) a 50/50 raffle, and live entertainment from the band Wynwood.
Jaxon Meschke was diagnosed with Cystinosis in January of 2018.
To donate directly visit
www.cystinosis.org
